in june 2014, cori-anne and jeffrey (stas's parents) started a social media page โstasyiaโs story โ down syndromeโ to share their amazing journey, to spread awareness and connect with others around the globe. stasyiaโs army has grown to over 30,000 followers as she continues to capture hearts by sharing the joy, challenges of her life, including every step of her most recent medical journey.
stasyia is a little girl at my school who kept having random episodes of experiencing random and diverse seizures. on january 30th, stas experienced a 4.5 hour seizure that started in her right hand. she was sedated, intubated and then airlifted to london, ontario childrenโs hospital on february 1, 2018.
cori-anne and jeffrey were told that stasyia had pneumonia with a collapsed lung, influenza b and epilepsy. they were also delivered the heartbreaking diagnosis that stasyia had suffered a stroke and has moyamoya disease. this new diagnosis meant more tests and a long road ahead. on february 7, 2018 the medical team removed stasyiaโs breathing tube and was looking to stabilize her to be strong enough to have brain surgery, the only option to treat moyamoya disease. after weaning her off sedation, stasyia suffered multiple seizures and another stroke. she was re-intubated and sedated and had more testing.
on february 8, 2018 stasyia was rushed in for emergency brain surgery despite not attaining the stabilization of respiratory health they had been working towards, nor decreasing the inflammation and reaching the level of calm post-stroke they wanted. additional strokes and neurological concerns far outweighed the latter. stasyiaโs same stubborn determination has carried her through a turbulent few weeks but the road ahead is still a long one.
i was hoping i could advertise her 'gofundme' page here. stasyia is a beautiful, young girl with down-syndrome and she has recently been diagnosed with a bunch of diseases which may be deadly. she doesn't deserve any of this. i started talking about her but a little after that, her health took a huge downhill. i am hoping that all this money will go to cori-anne and jeffery and i hope they can bring stasyia home soon.
please consider donating to help them, or at least bump the thread to show you care <3 a simple bumb or just a dollar can help. thank you for reading.
here is the gofundme page
update; here is stas's youtube channel where you can watch her grow and get better !!